'Doctors' in the UK - ordered chronically sick ME CFS CFIDS patient Sophia Mirza to be removed from her home by force (breaking her front door down) and locked her in a mental asylum to 'treat her'. Days after returning home - she died. Those in power refused an autopsy and her death would thus have been covered up - had it not been for the intervention of her devoted and loving mother and a helpful MS (Multiple Sclerosis) specialist. No apology was given, no action was taken by the authorities towards those who did this to her. Her mother and family is left destroyed. The British Medical Association (BMA) who have the power to strike doctors off their lists for inhumane/damaging behaviour - did nothing. These 'Doctors'(by innapropriate medical intervention) effectively killed this woman in the name of a belief system. The 'belief' she was insane. Outside the medical profession, people who do this are called 'terrorists'. (Religion being a belief system). Despite the autopsy PROVING this young person died of an inflammatory immune disease - there is silence from the guilty and silence from those who can punish. Sophia Mirza's injust suffering is a prime example of the arrogance and ignorance of the British medical profession when it comes to this awful condition. Doctors to this day, STILL believe they are Gods - despite their privileged knowledge being increasingly opened up to the public. They are not Gods, but they are legally immune - hence their behaviour. This video post is in memory to her immense bravery her mother speaks of. May she rest in peace, and never be forgotten. For the TRUTH on what ME does to people, go to: http://www.meresearch.org.uk/ http://www.investinme.org http://www.cfsrf.com/ http://www.ahummingbirdsguide.com http://phoenix-cfs.org http://www.ahmf.org

Tags: sophia mirza me/cfs cfs/me myalgic encephalomyelitis me m.e cfids pvfs cfs gene fatigue testing kerr wessely health

The facts about ME/CFS in this video were taken from many different ME/CFS organizations that are on the Web. ME/CFS can range from mild to severe in patients. It is estimated that 25% of ME/CFS patients suffer from a severe form of the illness and are completely disabled by it. This is a physical illness and is not psychological.

Tags: Chronic Fatigue Syndrome CFS CFIDS Myalgic Encephalomyelitis ME Disability Illness Mad World Gary Jules

Dr Kerr & the 'cure' that never was. No cure had been made available. Not due to Dr Kerr - but due to the blocking of funds to continue his work. (As has happened to Dr Gow) - another genetic expert from Scotland who is also finding things in this illness that people don't want to hear. I wonder why? Not that they have anything to hide or anything, no...... This is an edited (for time) clip of a Meridian TV news item that appeared on our screens over here in England,UK in 2005. Meridian TV should be applauded for having the bravery to broadcast this - it was NOT broadcasted nationally to protect the Government from shame and being asked questions - obviously. Consequently, only a few people saw it. Even after this ground breaking genetic discovery was broadcast the UK Government stil continue to block funding for research and a diagnostic test for ME/CFS. In 2008, not one ME/CFS clinic exists in the UK. All money is still going to psychiatry and the 'Wessely School' - despite M.E being recognised as a neurological illness by the World Health Organisation (W.H.O) since 1969. This flow of money is blocked by the MRC (Medical Reseach Council) who are influenced by the insurance industry - who have too much to loose to open the flood gates with 100,000's of thousands of patients making disability claims. The truth on ME/CFS is thus kept tightly shut. Doctors, civil servants and the general public -still have no idea that ME can be fatal. All we hear about is 'recovered' CFS patients in the newspaper - who 'recover' by taking anti-depressants and deciding they weren't actually ill after all. As you may know, the 'recovery' rate for ME is around 2%. Meaning 98% of people do not recover. Despite this, the british media rarely print articles on the severely chronically sick and instead focus on the mentally ill. These mentally ill people are 'volunteered' towards the media by bogus CFS charities. These charities are funded by the national lottery (Lotto) and extra government funding - to push a psychiatric agenda. The UK Government, and the BMA (British Medical Association) are thus a disgrace - as are bogus CFS patients, bogus CFS charities and the corrupt and evil Psychiatrits who prey on desperately ill patients. The NHS website in the UK claims 'most' people get better, and that this illness may 'last for months'. This is surely immoral? Promising people with viraly induced brain stem/ cardiac damage/DNA damage a cure with CBT/GE - graded exercise and behavioural therapy! For the TRUTH on what ME does to people, go to: http://www.meresearch.org.uk/ http://www.investinme.org http://www.cfsrf.com/ http://www.investinme.org http://www.ahummingbirdsguide.com http://phoenix-cfs.org http://www.ahmf.org

Tags: me/cfs cfs/me myalgic encephalomyelitis me m.e cfids pvfs cfs gene genetic testing test kerr wessely health

The video aims to help the friends and family of ME/CFS (including Myalgic Encephalomyelitis (M.E.), Chronic Fatigue Syndrome (CFS), and Post Viral Fatigue Syndrome) sufferers understand the illness and what their loved ones are going through. To view a clearer, larger version of the video, visit: http://www.sleepydust.net/me-cfs-chronic-fatigue-syndrome-video.html

Tags: chronic fatigue syndrome m.e. cfs post viral illness cfids fibromyalgia fms

A video diary raising awareness about the physical reality of severe ME

Tags: CFS/ME Caring

May is ME/CFS Awareness month, so I thought that it might be good to start a YouTube group for people with ME/CFS to share their stories. This is an introduction video. http://www.youtube.com/group/mecfsmystory

Tags: me/cfs cfs chronic fatigue syndrome cfs/me

This is the first part a new version my story that I have made for the new Youtube group http://www.youtube.com/group/mecfsmystory . I have started this group for people to record their experiences of ME/CFS in ordered raise the profile of this terrible disease.

Tags: me/cfs cfs chronic fatigue syndrome cfs/me

ME CFIDS CFS PVFS: Background to video clip: Speaker: Mrs Annette Whittemore. (Mrs Whittemore is co-founding the 'Whittemore Peterson Neuro-Immune Institue - Reno, Nevada, USA). To see progress on the project go here: http://www.wpinstitute.org/ Event: The International ME/CFS Conference -2007, London, UK. [***Event organised by the UK ME/CFS charity (1114035), 'INVEST in ME' (IiME) ***]. http://www.investinme.org =========================================== The published 2006 study by 'Leonard et al' found the following points regarding the average age of death of deceased ME/CFS patients Vs Avg population: Average age of Cancer deaths: ----------------------------- ME/CFS - 47.8 Years * Avg population - 72.0 Years Average age of Heart Failure deaths: ------------------------------------ ME/CFS - 58.7 Years * Avg population - 83.1 Years Average age of Suicide deaths: ------------------------------ ME/CFS - 39.5 Years * Avg population - 48.0 Years =========================================== [*These 3 causes of death above accounted for 60% of all ME/CFS deaths in the study*] Think about that for a second. . The official UK Government and Medical profession line (in general) is.. 'most' people fully recover, and better still, nobody dies. Yet the reality is full recovery runs around 2-5% and people DO die. If full recovery is 2-5% then 95-98% of people with ME/CFS never - fully recover to previous levels of health. Now you're free to disagree, as you aren't a Doctor in charge of my health, you're allowed an un-informed opinion as you're not responsible for my treatement and survival. But... surely people who DO deny FACT, who ARE in a position of medical trust (to the extent due to their ignorance people suffer or die) - well surely, they are deranged mentally or incompetant and unfit to practice as medical experts? Yet the public don't know about this, no matter who you tell - your parents, your friends, your doctor, your pet dog - this evidence is not allowed to be known to the masses as it's too costly FINANCIALLY to accept the Government has injured 0.3 million people alone in the UK. So we are left to die young - as you can see... Left to die fools. ME/CFS patients are paying with their LIVES. Whilst Psychiatrists and pen pushers (Government civil servants) 'argue' if ME/CFS is real or not. Why? They have been arguing since 1969 - that's 39 years ago when the W.H.O (World Health Organisation) declared ME a neurological illness. I present to you dear Youtubers - that ME/CFS is not only REAL, it can be DEADLY to those severely affected. Not only is this mind-blowing for an illness that is denied, but patients are dying 25 years earlier than others with the same diseases! ======================================= Download the study (Pdf) here: http://www.theoneclickgroup.co.uk/documents/ME-CFS_docs/Causes%20of%20Death%20-%20CFS%20Patients.pdf ======================================= Visit Dr Leonard's University website listing his work here: http://condor.depaul.edu/~ljason/cfs/ ======================================= Reference: Jason, L.A., Corradi, K., Gress, S., Williams, S., & Torres-Harding, S. (2006). Causes of death among patients with chronic fatigue syndrome. Health Care for Women International, 27, 615-626. ======================================= For the TRUTH on what ME does to people, go to: http://www.meresearch.org.uk/ http://www.investinme.org http://www.cfsrf.com/ http://www.ahummingbirdsguide.com http://phoenix-cfs.org http://www.ahmf.org

Tags: me/cfs cfs/me myalgic encephalomyelitis me m.e cfids pvfs cfs gene fatigue testing kerr wessely sophia mirza health

A video entry for the P.A.N.D.O.R.A. Video Contest, that raises awareness of ME/CFS from a carer's and sufferer's perspective and the need to fight for recognition.

Tags: ME/CFS PANDORA Advocacy Music

Unfortunately, while many advocacy groups started out doing excellent work to improve things for M.E. sufferers, today this is no longer true in most cases. So many of these groups which started out determined to fight against the 'fatigue' and 'CFS' psychobabble, and all the other financially and politically motivated propaganda, and now actively SUPPORTING it. It is very common to read information produced or supported by these groups which does not contain even a SINGLE facts about M.E., or about anything else. (At best, information on M.E. is mixed in randomly with information on 'CFS' as if they were one and the same). There are a small number of groups doing some good and worthwhile work for their members. Within that group there are a very small number of groups which really are virtually propaganda free and which do very clearly make the full and proper distinction between M.E. and CFS. Then there are the worst of the worst, the groups which support all of the worst psychobabble including graded exercise therapy (the most harmful 'treatment' for genuine M.E. there is, and the reason many with M.E. are so severely affected in the first place, or have DIED from M.E.). (These groups are the 'wolves in sheep's clothing'). This includes groups such as: AfME in the UK, the ME/Chronic Fatigue Syndrome Society of Victoria in Australia, and the CFIDS Association of America (CAA), among others. But the largest number of groups are somewhere in the middle. (These groups are the 'sheep'). They may or may not provide some small percentage of good information occasionally, but unfortunately they combine this with many times more propaganda/fatigue/CFS nonsense, so it's all rather confusing and just pointless in the end, despite any of the good intentions they may have (or claim/seem to have). But what is so maddening is that these groups are not only not helping people with M.E., they are also harming all those people misdiagnosed with 'CFS' to a similar degree. They help NOBODY. These comments do not just apply to a few rogue groups, unfortunately. They apply to almost all of them -- all around the world -- and virtually ALL the largest groups in each country. The number of 'advocate' groups -- and individual advocates -- not significantly or overwhelmingly affected is very small. We must fight to get these groups closed down, or at the very least these groups and individuals must be stopped from incorrectly and misleadingly claiming that they speak for (and provide facts on) authentic Myalgic Encephalomyelitis; as is happening so often now. These groups must stop hiding behind terms such as 'CFS' and 'ME/CFS' etc. and once and for all state clearly exactly who they are supposedly advocating for. These groups and individuals have caused enough needless extra suffering, abuse, neglect and DEATH. What is happening is a human rights travesty on a massive scale. This has to stop. It has to BE stopped. For more information on this topic see: http://www.ahummingbirdsguide.com/topicactivismgroups.htm For more information on all aspects of M.E. see: http://www.ahummingbirdsguide.com/whatisme.htm Acknowledgements: A big thank you to Claire Bassett for all the artwork in this video

Tags: Myalgic Encephalomyelitis CFS CFIDS CFS/ME ME/CFS activism advocacy severe

CFS is a multi-system disease which causes extreme fatigue, muscle weakness, cognitive dysfunction, hypersensitivity, orthostatic intolerance, digestive disturbances, depression, poor immune response, and cardiac and respiratory problems. According to the CDC, studies show that disability in CFIDS patients is comparable to multiple sclerosis, AIDS, lupus, rheumatoid arthritis, heart disease, end-stage renal disease, and chronic obstructive pulmonary disease. Yet, studies have shown that patients diagnosed with "Chronic Fatigue Syndrome" are not taken as seriously as patients with the same symptoms but a different name for their diagnosis. Thus, the name CFS not only affects the quality of treatment patients receive, but the amount of money committed to research! PWCs deserve to be taken seriously, to have a name for their illness that preserves their dignity, and to receive appropriate medical care! Spread the message -- CFS: Change the Name!

Tags: CFS ME Chronic Fatigue Syndrome CFIDS Myalgic Encephalitis

Photo montage with music of how a severe ME CFIDS CFS patient may feel after years (or even decades) of psychiatric abuse, neglect and general medical incompetence. I hope, YouTubers, that you like the video and feel it represents some of your feelings such as the desperation you feel - when ignored and blamed for something not your fault.

Tags: me/cfs cfs/me cfs myalgic encephalomyelits me m.e cfids pvfs suicide abuse chronic fatigue syndrome genetic kerr health

Training video from the British Psychiatric profession to 'teach' family Doctors (GP) that ME/CFS CFIDS patients are mentally ill, are not suffering from a neurological/immune disease, and can thus be 'treated' with psychological interventions such as behavioural therapy (CBT), Graded Exercise (GE) and Pacing. --------------------------------------- Claims made in Part 1 of this video about ME/CFS include: 1) Patients are likely to argue and be difficult people to deal with and cause Doctors - 'frustration'. 2) Have false 'preset ideas' on what causes their illness - such as a 'virus'. 3) Patients believe viruses have damaged their muscles and link this to their condition. 4) People with 'all or nothing' approach to life - develop ME/CFS. 5) Patients associate symptoms with activity - causing disabilty. 6) 75% of patients will be depressed/anxious - both in Hospital and Primary care settings. 7) Patients who feel 'loss of enjoyment' should take anti-depressents - even if not clinically depressed. 8) There is no underlying nerve damage in ME/CFS. 9) ME/CFS is the same thing as chronic fatigue - and this 'fatigue' is directly related to disability and life-style. 10) Patients 'beliefs' can affect how well they will 'engage' in treatement'. 11) Do not correct patients and 'put them right' on their false views in a consultation. Instead, incorporate patients false beliefs [of a 'virus'] into a complex theory of causation that supports 'a number of factors' - so to not scare the patient off. --------------------------------------- N:B Although dated, this video is still distributed in 2008. N:B In 2002, Professor Sir Liam Donaldson (Chief Medical Officer for England/Wales) said: ''"Patients suffer their symptoms being ignored, not being taken seriously, labelled as hypochondriacs, urged to pull themselves together." ''CFS/ME should be classed alongside other diseases such as multiple sclerosis and motor neurone disease''. --------------------------------------- Question: How then, is the psychiatric profession legally allowed to produce information like this - if they have been ordered by higher powers not to? Answer: Because this is what you think, because that would be the moral decision - to STOP disinformation that harms/kills patients. Politics is never moral. Public statements by Government ministers mean nothing - if they have a lot to lose by revealing the cause of ME/CFS. ME/CFS is a politicised illness because the Government know the cause. (Most likely Pesticides).

Tags: me/cfs cfs/me myalgic encephalomyelitis me m.e cfids pvfs cfs gene genetic testing test kerr wessely health

Training video from the British Psychiatric profession to 'teach' family Doctors (GP) that ME/CFS CFIDS patients are mentally ill, are not suffering from a neurological/immune disease, and can thus be 'treated' with psychological interventions such as behavioural therapy (CBT), Graded Exercise (GE) and Pacing. --------------------------------------- Claims made in Part 2 of this video about ME/CFS include: 1) Doctors should avoid telling patients they are psychologically ill - to reduce alienation and 'arguments'. 2) Patients may think (that Doctors think) they have an undiagnosed cause to their illness, which in a patients mind is 'a bit silly'. 3) Telling a patient the phrase 'you seem to fulfil the criteria of CFS' is enough to diagnose them with CFS and will 'satisfy' the patient well enough. 4) Use a practical approach by using 'activity scheduling' - because an ME/CFS patient 'worries' about undertaking an activity and then 'feeling' they have to rest after. 5) ME/CFS patients have got themselves 'caught up in a vicious circle' which has lead them to become physically disabled. By altering these thought processes, patients will improve. 6) Tiredness and 'fatigue' are genuine, but patients need to undertake activity that will make them feel bad. Patients should increase activity even if they feel really bad - because as long as it is done in a 'structured' way it will help. 7) By 'gradually building up' activity it does not have the same effect on patients symptoms. 8) Takes just months of gradually building back up activity levels - to recover from ME/CFS. ' 9) Patients have got into a 'habit' of avoiding activity - so now symptoms are controlling them, rather than the patient being in control of the symptoms. 10) Patients need to write down hour by hour what they are doing in a 'detailed diary' - and report back to the doctor with these levels of activity. These activities are then 're-ordered' to become more consistent to break ME/CFS patients associations between symptoms and activity. 11) ME/CFS patients need to distinguish between factors that contributed to the 'problem in the first place' and factors that 'keep the problem going once it's started' - which are reducing activity because they are fearful of continuing activity incase it makes them worse. 12) Consistent sleep patterns have a 'dramatic' effect on ME/CFS patients symptoms and quickly start to feel less tired. --------------------------------------- N:B Although dated, this video is still distributed in 2008. N:B In 2002, Professor Sir Liam Donaldson (Chief Medical Officer for England/Wales) said: ''Patients suffer their symptoms being ignored, not being taken seriously, labelled as hypochondriacs, urged to pull themselves together.'' ''CFS/ME should be classed alongside other diseases such as multiple sclerosis and motor neurone disease''. --------------------------------------- Question: How then, is the psychiatric profession legally allowed to produce information like this - if they have been ordered by higher powers not to? Answer: Because this is what you think, because that would be the moral decision - to STOP disinformation that harms/kills patients. Politics is never moral. Public statements by Government ministers mean nothing - if they have a lot to lose by revealing the cause of ME/CFS. ME/CFS is a politicised illness because the Government know the cause. (Most likely Pesticides).

Tags: me/cfs cfs/me myalgic encephalomyelitis me m.e cfids pvfs cfs gene genetic testing test kerr wessely health

Dr Lerner describes how a sub-set of (ME CFS CFIDS PVFS) patients may recover with anti-viral therapy: using the drug, Valganciclovir/Valcyte. Valganciclovir is used to treat cytomegalovirus infections or 'CMV'. ME CFIDS CFS patients are known to suffer from HHV-6, CMV, EBV viral infections. Dr Lerner shows an interesting 'slide' showing damage to heart muscle(cardiomyopathy). It shows fat infiltration into the heart and evidence of apoptosis/oxidative stress - Explained in this video: http://www.youtube.com/watch?v=A4pOpCMqDKI We are told by Psychiatrists there is no heart risk/damage in ME CFS CFIDS. This is a lie. ============================================ Heart Specialist Dr Lerner: ''We don't exercise these hearts'' - Until 8/10 functional capacity. Government Policy (NICE): Graded Exercise & Behavioural Therapy. WHO DO YOU THINK IS TELLING THE TRUTH? Specialist or Politicians? -------------------------------------------- Treatment for HHV-6, CMV, EBV: Virus -------------------------------------------- North Americans: Dr Lerner's clinic http://www.cfsviraltreatment.com -------------------------------------------- TESTING for HHV-6, CMV, EBV: Virus -------------------------------------------- North Americans: Virus testing http://www.redlabsusa.com Europeans: Virus testing http://www.redlabs.be ============================================ Further Reading: Dr Jose Montoya Virus Induced CNS Dysfunction: http://www.vicd.info/ ============================================ Detail of drug trial: http://med.stanford.edu/news_releases/2007/january/montoya.html

Tags: me/cfs chronic fatigue syndrome cfids pvfs cardiomyopathy lerner heart failure ebv cmv hhv6 hhv-6 ayme afme valcyte health

IM REALLY SORY FOR THE QUAILTY BUT I HAD TO MAKE ITLIKE THIS OR I COULDN'T UPLOAD IT! www.ayme.org.uk

Tags: M.E mylac Encephalopathy cfs chronic fatigue syndrome symptons headaches DAiiSYXO pain long term

Video introduction to Alison's Website http://fatigue.wikispaces.com

Tags: ME CFS chronic fatigue syndrome

OMG you guys, talk about brain fog! THIS was the video I thought I uploaded because I actually had the lighting on the camera right, LOL! As you can see if you watched the other video, I did make "similar" points, but as you can see in this video, I went in a TOTALLY different direction...OMG, I should be humiliated but hey, that's life with M.E. Again, I want to thank, of course my vampire twin soul sister and one of my best friends in real life, as well as beenie, who has lupus and is such a courageous lady, Carrigon, who is also a good friend with M.E. and has been so supportive, and to the healthy people who have messaged me, left comments, supported me, and have shown that people do care. Thanks soooo much to all of you. And thanks for putting up with my dysfunctional brain...ugh

Tags: ME CFS CFIDS Myalgic Encephalomyelitis Chronic Fatigue Syndrome

Dr Lerner describes how a sub-set of (ME CFS CFIDS PVFS) patients may recover with anti-viral therapy: using the drug, Valganciclovir/Valcyte. Valganciclovir is used to treat cytomegalovirus infections or 'CMV'. ME CFIDS CFS patients are known to suffer from HHV-6, CMV, EBV viral infections. Dr Lerner shows an interesting 'slide' showing damage to heart muscle(cardiomyopathy). It shows fat infiltration into the heart and evidence of apoptosis/oxidative stress - Explained in this video: http://www.youtube.com/watch?v=A4pOpCMqDKI We are told by Psychiatrists there is no heart risk/damage in ME CFS CFIDS. This is a lie. ============================================ Heart Specialist Dr Lerner: ''We don't exercise these hearts'' - Until 8/10 functional capacity. Government Policy (NICE): Graded Exercise & Behavioural Therapy. WHO DO YOU THINK IS TELLING THE TRUTH? Specialist or Politicians? ============================================ Treatment for HHV-6, CMV, EBV: Virus -------------------------------------- North Americans: Dr Lerner's clinic http://www.cfsviraltreatment.com -------------------------------------- TESTING for HHV-6, CMV, EBV: Virus -------------------------------------- North Americans: Virus testing http://www.redlabsusa.com Europeans: Virus testing http://www.redlabs.be ====================================== Further Reading: Dr Jose Montoya Virus Induced CNS Dysfunction: http://www.vicd.info/ ====================================== Detail of drug trial: http://med.stanford.edu/news_releases/2007/january/montoya.html

Tags: me/cfs chronic fatigue syndrome cfids pvfs cardiomyopathy lerner heart failure ebv cmv hhv6 hhv-6 ayme afme health

GuptaProgramme.com - Video by Ashok Gupta explaining how this exciting new treatment can help people recover from these conditions, & that the treatment is now available as a reasonably priced interactive DVD programme with a money back guarantee, available anywhere in the world at www.guptaprogramme.com

Tags: me cfs m.e. myalgic fibromyalgia me/cfs anxiety depression fm lightning process mickel therapy reverse cbt

Dr Lerner describes how a sub-set of (ME CFS CFIDS PVFS) patients may recover with anti-viral therapy: using the drug, Valganciclovir/Valcyte. Valganciclovir is used to treat cytomegalovirus infections or 'CMV'. ME CFIDS CFS patients are known to suffer from HHV-6, CMV, EBV viral infections. Dr Lerner shows an interesting 'slide' showing damage to heart muscle(cardiomyopathy). It shows fat infiltration into the heart and evidence of apoptosis/oxidative stress - Explained in this video: http://www.youtube.com/watch?v=A4pOpCMqDKI We are told by Psychiatrists there is no heart risk/damage in ME CFS CFIDS. This is a lie. ============================================ Heart Specialist Dr Lerner: ''We don't exercise these hearts'' - Until 8/10 functional capacity. Government Policy (NICE): Graded Exercise & Behavioural Therapy. WHO DO YOU THINK IS TELLING THE TRUTH? Specialist or Politicians? ============================================ Treatment for HHV-6, CMV, EBV: Virus -------------------------------------- North Americans: Dr Lerner's clinic http://www.cfsviraltreatment.com -------------------------------------- TESTING for HHV-6, CMV, EBV: Virus -------------------------------------- North Americans: Virus testing http://www.redlabsusa.com Europeans: Virus testing http://www.redlabs.be ============================================ Further Reading: Dr Jose Montoya Virus Induced CNS Dysfunction: http://www.vicd.info/ ============================================ Detail of drug trial: http://med.stanford.edu/news_releases/2007/january/montoya.html

Tags: me/cfs chronic fatigue syndrome cfids pvfs cardiomyopathy lerner heart failure ebv cmv hhv6 hhv-6 ayme afme health

ME/CFS is een ziekte die niet erkend word door de overheid. Er bestaat veel misverstand over deze ziekte.

Tags: ME/CFS/PVS=post viraal syndroom Politieke Nieuws

A closer look at the therapy/training programme that purports to cure ME patients. As you will no doubt see, I am not a fan of such things as a cure for CFS/ME. I don't think that the available literature supports it, the evidence for subtypes does not support a blanket treatment with such efficacy, and therefore 'cures' make me raise an eyebrow. Proponents of the LP assert that they had a physical illness. I would like to submit to viewers of this video this question: what part of this description does not strike you as psychology? I personally improved markedly over time with pacing etc, so this video goes out to all of you who are still struggling with the illness and are waiting for medical breakthroughs. Or possibly fed up with the plugging of therapies in general. I certainly am. :) Don't take my word for it. Here are some links on ME/CFS worth checking out: The Physical Basis of CFS - Anthony L. Komaroff, M.D., Harvard Medical School: http://www.co-cure.org/physical.htm An interview with Nancy Klimas: http://www.nbc6.net/videostream/10228382/detail.html CFS Awareness Campaign by the CDC: http://www.youtube.com/watch?v=SYaCAcXD6ls British researchers are close to developing, for the first time, a blood test and potential drug treatments for myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS), following groundbreaking work on its genetic origins. In its most extreme form, the disease leaves sufferers bed-ridden and can even be fatal. (March 2008 article) http://www.telegraph.co.uk/earth/main.jhtml?xml=/earth/2008/03/18/scime118.xml The Immunology of Chronic Fatigue Syndrome: http://www.haworthpress.com/store/ArticleAbstract.asp?sid=FWC3SUEMJS6D8JD2J2QV46ELRKPQ3GUC&ID=9185 The Four Phase Model of Chronic Illness - how many of us have been through this? :) http://www.cfids.org/archives/2000rr/2000-rr2-article03.asp

Tags: Myalgic Encephalomyelitis Lightning Process ME CFS Chronic Fatigue Syndrome CFIDS

This is my third entry into my diary about having M.E The first, second and fourth are in my videos section - go have a watch :) Please watch, comment, subscribe and stuff if you suffer from M.E/CFS or any other type of illness that most people don't understand or even think exsists. Music; Mary - The Scissor Sisters I obv don't own any rights or anything to this song

Tags: M.E CFS myalgic encephalomyelitis chronic fatigue syndrome fibromyalgia scissor sisters mary

My daughter filmed this on her phone, I was feeling really poorly!

Tags: M.E Fibromyalgia cfs Chronic Fatigue Syndrome Pain Ehlers Danlon